Monday, April 6, 2009

Settling down to the new routine.

So, the last couple of weeks have been very crazy and I lacked all energy and desire to think about my life at all, not to mention telling people about it. Things have settled down (somewhat), now, so I'll do a brief recap.

Lucas' medical problem is definitely not a serious version. There is every indication, in fact, that he could have learned to walk on his own and just been a little odd-looking while doing it for the rest of his life. There's even the possibility that there isn't a problem at all and that he's just a slow developer walking-wise. Still, that being said, I support the therapy for him. It's really simple analysis:

  1. We don't do the therapy. Lucas has a problem. He's saddled with it for life. (bad outcome)
  2. We don't do the therapy. Lucas doesn't have a problem. No change. (neutral outcome)
  3. We do the therapy. Lucas has a problem. The therapy helps him. (good outcome)
  4. We do the therapy. Lucas doesn't have a problem. No change. (neutral outcome)
If we don't do the therapy, we've got one bad possible outcome and one neutral possible outcome. If we do the therapy we've got one good possible outcome and one neutral possible outcome. (I'm not factoring in the cost of the therapy because the analysis is specifically for "should we spend the cash?" I'm also not putting in pessimistic evaluations like "we do the therapy and it makes things worse" for reasons I'll outline below.) Basically the answer writes itself, doesn't it?

Anyway, after some serious adjustments to lifestyles, we've settled into a new routine. I've had glimpses of his treatment in bits and pieces over the last little while but today, courtesy of visiting friends of Joan's mother and my own availability because of the national holiday (Grave-Sweeping Day), I got the whole picture and can paint a copy of it for those of you who haven't fallen asleep because of Yet Another Lucas Blog Entry (YALBE). Here's what my son goes through every day.

First he's bundled up and taken to the hospital. Upon arrival he's scheduled for the "neural channel balance" treatment. When the time comes, he's taken into the torture chamber treatment room and hooked up to the machine. The first round, for ten minutes, has electrodes on his wrists and at his elbows. He's given low-voltage, low-amperage shocks about 2.5 times per second making his muscles twitch. He hates this with a passion and starts squalling along with the 10-15 other babies in the room being given the same indignities. After a few minutes of this he stops squalling and just whines a lot. Now I'll point out that this treatment is not painful (I tried it out once for a lark as a form of exercise a few years back). It's just really, really annoying and to a baby undoubtedly really, really frightening.

After the ten minutes on the arm, the electrodes are moved to the ball of the foot and the back of the knee and he's left twitching there for 20 minutes. He hates this even more and squalls the entire time, exhausting himself. When this is finished he's moved to a different machine and hooked up behind the ears. I don't know what this particular machine is called since the labelling is all in Chinese, but it doesn't seem to cause any visible twitching. Further, once the electrodes are glued on and the machine turned on, Lucas slowly relaxes and, because of the exhaustion from the first two rounds, falls asleep. This goes on for 30 minutes.

Once the electroshock neural channel balance treatment is completed, he's moved over to physiotherapy. There a very nice doctor (and very patient, something he has to be to deal with a child as strong and wilful as my son!) puts Lucas through his paces. Now in the past, according to Joan, Lucas actively fought with the doctors. I saw no signs of this today, however. He didn't cry. He didn't struggle (much). He whined at a couple of things, but mostly he just patiently endured and played with Joan and I while the doctor forced his feet and legs into proper postures and held him there for a while. (The one time he whined loudly, but not quite cried, had the doctor forcing him to squat and stand repeatedly for about five minutes straight.) This goes on for about 40 minutes. After that Lucas is left free to crawl (and walk!) around the physiotherapy room with its padded floors and walls (not to mention the large selection of toys and balls, the former supplied by the various parents in the room who share with each other).

Some of the equipment in this room amused me. It looks very basic and unsophisticated, like a rustic's notion of a hospital, but each piece was actually quite well-designed for its task. One piece, for example, for assisting with balance, is basically a platform with a V-shaped bottom. The doctor stands on the platform, helping the baby stand, and then rocks the platform back and forth. In a western hospital this would be an expensive piece of electrical equipment, likely computer controlled, but in the end would do exactly the same thing -- just for a thousand times (literally) the price. Sometimes the technology fetish of the west amuses me.

Anyway, back to Lucas' day.

This is his lunchtime. Normally he's taken back to his bed in the hospital and is fed, but today was special. We dragged him out of the hospital and into a restaurant with Joan's mother and the visiting friends. After that we returned to the hospital for the manual torture massage therapy. Again Joan insists that he usually fights the doctor and screams loudly, and to give her credit the other babies in the room (six tables, four were active) were certainly lending credence to this report. Whatever the reason, though, Lucas today just slept through it. I mean that literally. He slept through 30 minutes or so of the 45-minute massage.

The doctor was very good. Very strong, but very skillful, fingers worked over my boy quickly, precisely, firmly and yet gently. (I wish I could find a masseuse like that for my back!) Lucas woke up toward the end, when the massage moved up to his head, and he started a low-grade whining when the masseuse started working on his head around his face. Otherwise, however, he was having more fun playing with Joan and me than he was having annoyance at the massage. This despite the fact that all around him were babies screaming at the top of their lungs as they were manipulated up and down the entire length of their bodies.

Then it was time to come home again, Lucas cheerful, practically bubbling and me silently bursting with pride when I mentally compared his behaviour with that of the other babies I saw. (That same comparison, incidentally, is why I so confidently assert that his problem is not a serious one.) I also left with considerably more respect for Chinese hospital treatment than I went in with. Chinese hospitals are still a little weak on germ theory, it seems, but surgery and now physiotherapy they're both top-notch at in my opinion.

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